Assistance and Medical life help for MALS

So ive been trying to raise money for a consultation and possible surgery and for possible hardships im life becsuse she is unable to work or get on disability and help. Me my girlfriend have been together for 2 years and every day is a struggle. The disease is called MALS. Median Arcuate Ligament Syndrome. A super rare disorder. She was first diagnosed when she was 16, and one of the first cases. She is now 31. When orignally diagnosed, nothing was known about the illness and there were even less specialist surgeons who knew how to deal with it. She lives in constant pain and is in and out of the hospital a lot. So, anything will help. All funds will go towards surgery and general living expences since she is unable to maintain a job because she is out of and able to make it to work becsuse she is sick a lot. Hopefully with another surgery since more things are know about it now, it will work.. because last one didnt.