Support Illyana's Heart Warrior Journey

Illyana was born on 5/28 and she is such an amazing gift from God. Originally, we found out she had Tetralogy of Fallot with Absent Pulmonary Valve. Then, Discontinuous Pulmonary Branch Atresia was discovered after she was born. This is a condition that 1 in every 200,000 to 1 in every 300,000 are born with. This one heart disease has been added to the diagnosis, increasing the rarity of the condition from the 0.2% to 0.4% to now 1000 times rarer.

She had open heart surgery at 29 days old. She is a heart warrior. In addition to this, she was also born with one kidney and also has DiGeorge syndrome. It has definitely been a journey. If you would like to help lighten our burdens, we could definitely use the help.

Mom and Dad have been out of work due to health issues of Amanda before Illyana came and then once she got here the journey has been so many unknowns of when things were gonna take place so they haven’t been able to work, Amanda is a bus driver so she has gotten blessed to be able to not worry with that and Ronald’s job is holding it for him he just hasn’t been able to leave Illyana and Amanda during this journey. Bills are starting to build up and we need help. We are grateful for the help we have gotten this far it has helped keep us going.